I’m Timesia Hart
After failing all known treatments including Rituximab, I continued to have reoccurring exacerbation leading to paralysis. After a period of time, I was accepted for a Hematopoietic Stem Cell Transplant a clinical trial at Northwestern Memorial Hospital.
Since a successful transplant by Dr. Richard Burt and transplant team, I have recovered some mobility with no reoccurring exacerbations, and am not on maintenance medications.
Most of my time is spent doing Advocacy work for the Foundation.
The L2W Foundation began after my struggle with a MS misdiagnosis in 2009. As a result I became paralyzed from the neck down for 11 months. One positive test after having gone through numerous painstaking tests narrowed the correct diagnosis for Neuromyelitis Optica (NMO). I was fortunate to find a doctor in Chicago performing hematopoietic clinical trial stem cell transplants, and I received a stem cell transplant in 2013. Surviving 8 years of arduous treatment, continuous rehabilitation, along with my relentless fight with insurance forced the necessity for this foundation.
There are milestones being made for many well-known Neurological diseases, such as MS, Parkinson’s, and Alzheimer, to name a few. NIH recently named NMO a separate disease rather than a component of MS, reporting up to 15,000 cases in the US. Of those cases many do not survive. Living to Win aspires educate the medical public, raise awareness, and assist patients and their families.
“Live life to the fullest because it only happens once.”